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Tuesday, July 25, 2017
Giving a Voice to a “Silent” Disease: JDRF Children’s Congress Radio Media Tour
Over 160 children between the ages of 4 and 17 are in Washington this week to advocate on behalf of the JDRF Children’s Congress. Each of the 160 delegates, representing all 50 states and the District of Columbia, is living with Type 1 Diabetes. Their goal on this advocacy trip is to lobby their local representatives in Congress to renew the Special Diabetes Program. The program, which provides $150 million annually to various research institutions, makes life as a Type 1 Diabetic a little easier through technological and medical advancements.
To spread the word about the mission of the Children’s Congress, several delegates were selected to participate in an on-site Radio Media Tour (RMT). The children phoned into local radio stations back in their home states to share their stories and experiences living with Type 1 Diabetes, and how the Special Diabetes Program has benefited their wellbeing.
In addition to the delegates, Derek Rapp, President & CEO of JDRF, Aaron Kowalski, JDRF’s Chief Mission Officer and Scientist, and Paul Sparks, Actor and JDRF Celebrity Advocate, participated in the RMT. Sparks, who was diagnosed with Type 1 Diabetes in 1999, says that because of JDRF and its advocacy efforts, life with the disease has become less challenging.
For many of the child delegates, the opportunity to meet other boys and girls facing the same challenges is very moving. Over the course of the three-day event, delegates will not only meet with Congressmen and women, but will have the opportunity to share their stories and listen to the stories of others also living with the disease. Being able to share their stories on Capitol Hill and through the RMT gives the delegates and national spokespeople the platform for advocate for their health and livelihoods.
To learn more about the JDRF Children’s Congress, visit http://www.jdrf.org/get-involved/jdrf-advocacy/. And for more information on how on-site Radio Media Tours work, please visit: https://www.newsgeneration.com/services/on-site-event-coverage/.